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All our partnerships

French National Registry of Childhood Cancers

Make pediatric oncology data more visible for discovering new drugs
+2300
aggregated patient data
4
databases

Description

Objectives

  • Facilitate the discoverability of the 4 RNCE databases
  • Enable external partners to explore data in a controlled environment".
  • Make RNCE data accessible without moving it (#data-visiting)
  • Accelerate understanding of the causes of childhood cancer

Results

  • Provide a data identification environment for the various players
  • Increase the number of public and private collaborations
  • Increase the number of scientific publications with a high impact factor

Issues

  • Low data visibility
  • Need for multi-source data integration
  • Difficult access to data

ADLIN's role

  • Deploy dynamic dashboards to make data more discoverable
  • Providing a safe space for exploration
  • Facilitating data enhancement